PACIFIC NORTHWEST
KABUki syndrome 
community + events

Saturday, August 13
Save the date
in Renton, Washington
Details coming soon!
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RELATE / RECHARGE / RESEARCH

 

about us

 

We host an annual regional event for families affected by KS.

All are welcome!

We have partnered with All Things Kabuki, Inc.

To learn more about Kabuki Syndrome

or All Things Kabuki, please click here.

Details will be added to this space and

our FB Group: PNW Kabuki Syndrome Network 

as they are confirmed. Join us!

1

COMMUNITY

3

DAYS

25+

FAMILIES

 

MISSION

Our mission is to connect families affected by this rare disease

and offer a real opportunity to:

RELATE 

Spend time with others who share similar experiences and can relate to everyday challenges and victories, without having to explain a complicated genetic condition

RECHARGE

Learn about regional programs and resources

RESEARCH

Hear from medical professionals about ongoing efforts to understand and provide therapies for Kabuki Syndrome

We strive to keep this event free to families.

Please consider donating to our special community.

August 2019 Schedule

FRIDAY

24th

SATURDAY

25th

SUNDAY

23rd

6:00 PM

Meet & Greet at Meadow Crest Playground in Renton

8:00 PM

Dads' Night Out in Downtown Renton

9:00 AM

Registration Opens

Children Check-In to Childcare

10:00 AM

Welcome & Meet the Families


Washington ABLE, Chris Gagnon

11:00 - 11:15 Break

Angie Serrano, Researcher

Noon

Childcare Ends

Lunch (Provided)

1:00 PM

Miss Danielle, BrainDance 

SibShops & Kabuki Jeopardy
hosted by Zac, Audrey, and Amy

2:00 PM

Raffle & Closing

6:00 PM 

Moms' Night Out

10:00 AM

Tukwila Family

Fun Center

Noon

Meet for lunch at our reserved tables. Look for the green balloons!

 
 

contact

The PNW Kabuki Syndrome Conference Planning Team

contact

The PNW Kabuki Syndrome Conference Planning Team